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Friday, May 6, 2016

May 06 Update: Of Flu's and School and the Little Dipper

Jayna is today 5.005 pounds of pure baby. Apparently Mommy's got the goods! She's due for another echo of her heart today, as well as an eye test; both routine. I mentioned last week that she had been put back on caffeine, and that has not changed. Up until today, she had not had a brady (heart) dip for an entire week, however this morning her heart rate dipped to 65 for 15 seconds. She did bounce back from that without intervention though, which is a good sign. Candy spoke with the doctor yesterday and she explained how the caffeine, Jayna's heart rate, and the oxygen saturation in her blood are all interconnected. She said the reason they had kept the caffeine going despite no brady dips was that Jayna had still been having O2 desaturations, (O2 level dipping below 88 for a prolonged period). They had thought to remove the caffeine again today since she hadn't had a brady dip for so long and has been averaging only one O2 dip per day, but that may not happen now given this morning's episode; we shall see. You may be wondering what the big deal is about the caffeine - basically it's one of those milestones we need to see before she can come home. I guess sometimes you just have to quit the coffee before anything good can happen in your life. Other things that need to happen are the successful withdrawal of additional O2,  and a demonstration that she can stay awake long enough to get all her feeds in by bottle or breast. Our little dipper is incorrigibly snoozy. With all our other kids, it was possible to wake them when they'd fallen asleep feeding, but Jayna is just too interested in the back of her eyelids, which necessitates any remaining feeding being given by gavage tube. Our oldest son, born at 35 weeks, was also a pretty sleepy baby. It is quite normal for pre-mature or pre-term babies to be sleepy. I think I might be a preemie in disguise.

So flu kinda' rhymes with school but that's about as good as it gets. Last Saturday, we had a scary episode here as our middle son abruptly came into the living room from bed announcing with tears and a panicked look on his face that he could not breathe. One of our other children had had a flu earlier in the week, and he had apparently caught it with a vengeance. We prayed, then immediately administered an asthma puffer, threw him in the car and were off to CHEO. It was 10:20pm. At 4:20am we crawled up the steps and collapsed into bed after blood work, a dual shot of antibiotics, and a steroid for his breathing. I finally succumbed to the bloomin' bug yesterday, and I've been wandering around the house uselessly ever since; school's out!

Keep us in prayer. We're struggling to push through, "But thanks be to God, who always leads us in triumph in Christ, and manifests through us the sweet aroma of the knowledge of Him in every place"(2 Cor 2:14). I say this from a place of need and trust, because I don't feel very triumphant at the moment. Here's a verse I read this morning, that I hadn't noticed before, "...if you are not firm in faith, you will not be firm at all" (Isa. 7:9b). We need to live our life by faith, losing ourselves and embracing Christ. If we cannot be firm in that most fundamental of places, the rest will not work right, consigning us to frustration and rendering us unfruitful. Please pray for us, that we will exercise mountain moving faith, and trust the Lord with all our hearts!


  1. It's time for Netflix homeschool! Don't sweat it that homeschool is on standby for a bit. It's okay. A teacher friend of mine pointed out something very encouraging; even in school there are weeks that are less productive than others, like when the school is preparing for an annual play or one week includes a P.D. Day plus a snow day or two. What a blessing to homeschool and be able to have breaks when there is illness and no one is getting behind with their homework. Facing challenges with grace and patience are skills you want to be teaching your children too; how blessed you are to have this opportunity now ;-)
    Hang in there, friends. This too shall pass....

    1. Thanks so much for the encouragement.😊 And happy Mother's Day!