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Friday, May 13, 2016

May 13 Update: Who Needs Oxygen Anyway?!

Our little beauty was taken off of oxygen on Wednesday! Now, they will only be giving her supplemental oxygen during her feedings. Jayna is behaving more and more like a newborn: her wakeful times are lengthening in duration, she’s fussing more when she’s uncomfortable, and she’s really chunking out! Her feeds are more frequently by bottle now rather than gavage tube, though the nurses still have a difficult time keeping her awake long enough for her to complete a bottle feed. Candy was able to nurse her for 20 minutes the other day, a breakthrough for sure. She is till having apneic spells where she will stop breathing altogether causing her oxygen sats to plummet. We’re being told that if she can go five straight days without a spell, they will remove the caffeine. After that, she’ll need to go another five days without a spell before they will feel comfortable discharging her. So at the very least, she will be in hospital for another ten days. Interestingly, we’re finding this period a bit more difficult in a way because now that Jayna is behaving as a newborn, her need for extra care is not so apparent to us, making it harder to leave her there each day. Our other children are feeling the strain as well. Just the other day, our seven year old daughter came to us and said, “Daddy, it’s sad when a member of your family is in the hospital, and they’re taking so long to come home. You just want them to come home.” I couldn’t have said it better myself. 

Though it is sometimes sad, there is also hope. I was reminded last week that hope, the hope we have in Jesus, does not disappoint. So we press through, in hope believing, and know that it is simply a matter of time before the peanut joins her family at home. Thank you all again for your prayers and support. I've added a little video below, isn't she sweet!

1 comment:

  1. Your preservence will be rewarded! Looking forward to the day when you tell us Jayna is coming home